I started this blog  during the second emotionally charged phase of my condition. The first was when I was initially diagnosed – the second was when I was told  they wanted to start the evaluation for new lungs and possibly a heart. This prospect sent fear, sadness and anger rushing through my body. At one point after my diagnosis I was walking four miles a day and living life to the fullest I could. Then winter came – I situated into a new life that I found for myself and thought I was prepared to start working full time again.  I wasn’t. The balance that I had found that made me feel better was the balance I need to maintain in order to fight this incurable disease. I now am just starting to find that balance again and intend to bring everyone up to date on my trips to Duke in North Carolina and my current treatment plan.  Afterwards I will update this blog on a regular basis as I made a comfortable place outside to sit, think and share this journey I find myself on. 

-Love 

   Sarah